Lung Transplant Clinic Appt. Nov. 16th

At 6:30am, ugh! Weight is still improving. I was about 110! Unfortunetly, my lung function was down on all tests :( Ranging around 4-8%. So I'm getting a bit worried. The doctor said to keep an eye on it and we'll see how I do next appointment. I'm even more worried about my numbers now than I was before transplant. On top of my health worries, I have new issues I'm having to deal with right now that are really adding to my stress. My Dad's wife just found out she has stage 4 cancer and it's spread through out and somehow her other doctors had failed to have her tested for it or even mention it even though she clearly was in poor health and having lots of issues. On top of that there are other family, insurance, and other issues making my life even more stressful. Thank goodness my family is coming to visit for Thanksgiving. That will at least cheer me up. I'll post an update after next clinic visit in 2 weeks. I also have a bronch coming up Dec. 8th and The Lung Transplant Christmas Party Dec. 6th! Hope everyone has a great Thanksgiving!

3 month TX Anniversary!

A little late but On November 8th, it was my 3 month post Lung TX Anniversary! My lung function has improved a tiny bit hanging around the mid 70's. My weight has greatly improved, weighing around 108. My prednisone has been cut back to 15mg a day instead of 20mg. My Prograff levels continue to fluctuate so I still have to get blood work done for that every week. I no longer have to wear those annoying tight thigh high TED Hose for blood circulation / clots!!! Oh man does it feel so good to have those things off for good! I still have some wheezing and phlegm which bother me. Doctors don't seem too be too worried b/c my numbers are doing ok. Still on soft foods but able to eat a little more. Found out I could get down some lasagna and chips with lots of dip on them, haha. I did an interview with a nice lady from the paper in S.C. where my Aunt lives and I used to live several years ago. If you'd like to read it check out this link http://www.upstatetoday.com/news/2009/nov/11/tanyas-story-living-gift/